Within the framework of the humanitarian presidential initiative launched by His Excellency President Abdel Fattah El-Sisi, President of the Republic, to treat children with spinal muscular atrophy free of charge at the expense of the state, the first two cases were injected for the two girls, Nagham Mohamed Salama, from Beheira Governorate, who will complete her second year in two weeks, and Lama Eid Ali, from El-Beheira Governorate, Fayoum, 10 months old, at Ain Shams University Center for Musculoskeletal and Neurodegenerative Diseases, which was specifically inaugurated to carry out the task of injecting patients within three centers that came in implementation of the presidential initiative, which is the first of its kind and unique to the Arab Republic of Egypt in the world, due to the high price of treatment, where the cost of treatment is Each injection is 2.1 million dollars, to be borne by the state to relieve the burdens of Egyptian families.

The doctors of Ain Shams Specialized Hospital, affiliated with Ain Shams University Hospitals, under the auspices of Prof. Dr. Mahmoud El-Metini, President of Ain Shams University, supervised by Prof. Dr. Ayman Saleh, Vice President for Graduate Studies and Research, and Prof. Dr. Ashraf Omar, Dean of the Faculty of Medicine, Chairman of the University Hospitals Board of Directors, and Prof. Dr. Ali Al-Anwar, Executive Director of Ain Shams University Hospitals, and Prof. Dr. Hani Aref, Head of the Department of Neurology and Prof. Dr. Walid Anwar, Director of Ain Shams Specialized Hospital and Prof. Dr. Nagia Ali Fahmy, Professor of Neuroscience and Director of the Musculoskeletal Diseases Unit at Ain Shams Medicine, injected the two children with the most expensive drug in the world.

Prof. Dr. Mahmoud El-Metini expressed his pride in the university’s participation in the humanitarian presidential initiative launched by His Excellency President Abdel Fattah El-Sisi, President of the Republic, to treat children with spinal muscular atrophy free of charge at the state’s expense. This is not the first time that doctors in the Specialized Hospital have injected children with spinal muscular atrophy, as it was preceded by two cases that were injected with this drug, which is the first gene therapy of its kind in the world that is given to the patient by intravenous injection for one time only.

He added that the Musculoskeletal and Neurological Diseases Unit, which was established 25 years ago in Ain Shams Medicine, was able to provide services that did not exist in the diagnosis and treatment of clinical and genetic examinations.

The unit seeks to make Egypt a center for research and clinical and clinical trials on genetic and hereditary diseases, to be included within the presidential initiatives to care for public health and implement Egypt’s vision 2030.